Sorry this post is so late in the day, been going back and forth to hospital the whole weekend due to family coming to visit. So my story...
I married my wife Amanda in May of last year, one month after we were married she started feeling out of breath and having trouble doing small tasks like walking up stairs. We went to the doctor thinking it was prabably just asthma. Three incorrect diagnoses' and several doctors later, we were told that she had a tumor the size of a fist pushing against her lung that caused fluid build-up and eventually collapsed her lung. The doctors first plan was to open her up and remove the tumor, you could imagine our shock when dealing with that news. Luckily another doctor had a look and decided that the better route would be to try chemotherapy since the tumor was Hodgkins Lymphoma. The type of chemotherapy was ABVD which is relatively mild compare to treatments for other cancers. Six months later she had finished 5 rounds of chemo and many radiation treatments, it was a miserable time for both of us but we got through it and we anxiously waited for her scan results that would tell us she was in remission and we could get on with our lives.
At the end of her treatment, Amanda was feeling a lot better and i was deployed to Kuwait since she was well enough to care for herself. I had hoped to return a year later to restart our long healthy lives together. Unfortunately, six months in, i got a call from Amanda and she told me that a recent scan showed the cancer had returned and it was more aggresive than before. I got permission to return stateside immediately and treatment was underway upon my return. This time the chemo regimen was called ICE, a very harsh chemotherapy with sever side-effects. Unlike the previous treatments she had, this chemo left her bed ridden and too weak to do much on her own. She would get infections regularly due to her weakened immune system and all of her hair came out within the first couple of weeks. It was heartbreaking to see how sick she was and all i could think about was how much there needs to be a better way to treat cancer.
One day in late september this year, her stomach started to hurt so bad that we had to take her to the hospital, she was diagnosed with Typhlitis, an infection of the lower intestine that could be fatal even when treated. Her body was so weak that even under constant care in the hospital she suffered a cardiac arrest and went almost thirty minutes without oxygen to her brain. The doctors stabilized her but told me that due to the length of time she was under, she most likely would not recover most of her brain function. I was told that my 24 year old wife would probably spend the rest of her life in a hospital bed. Bear in mind, this was not caused by her Hodgkins Lymphoma, this was a direct result of the chemotherapy. I'm not blaming the doctors or the scientists for using this type of treatment, in many cases it does help people. However, nobody should have to endure this misery, there just has to be a better safer way to treat cancer. I read about the research being done at the stanford labs and decided i'd do everything i could to support the folding at home project. I'm realistic, i don't think there will be a new treatment developed in time to help my wife, but if people in the future can survive cancer without chemotherapy than we need to do eveything we can to make that a reality.
Now for the good news...
Contrary to what several neurologists told us, Amanda has made leaps and bounds in the past couple months in terms of recovery. For the first month and a half, she was completely vegetative. One day a few weeks ago, after much patience and repitition i got her to say her name. She can now carry on conversations and regained a large portion of her memory(some things are still a little fuzzy) She began physical therapy this week and we hope to have her walking by christmas. We had a nice thanksgiving here in the hospital, she enjoyed the turkey, potatoes and stuffing my family brought in and hopefully we can have our next holiday meal at home away from the hospital.
Once she is strong enough, she will have to continue her chemotherapy, we're not looking foward to it but it's the only option she has to see the end of her disease. So everyone cross their fingers and fold like crazy and maybe we can see an alternative cancer treatment in our lifetime.
Amanda and I at Virginia Beach Summer of '09
This picture was taken today, i love that she's smiling again